Solve ME/CFS Initiative Takes Part in #MillionsMissing Protest

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I have become home/bedbound with M.E. (Myalgic Encelphalomyelitis), which is why my blogging has all but disappeared. When my energy allows, I have been writing a new entry bit-by-bit with the hope of getting it online soon. In the meantime, I must reblog this important entry by Sunshinebright about the MillionsMissing Project. I did manage to tweet in support on May 25th, so I feel good about participating in my own small way. Many thanks to all who made the Project a successful protest. Now the test is to see where we go from here: did the people we needed to reach listen? Time, and possibly continueing the MillionsMissing Mission, will tell…

Sunshinebright

Solve ME/CFS Initiative President Carol Head said that following last year’s Institute of Medicine report, there is no reason for the federal government to drag its feet on aggressively funding research on the disease.

“It is the role of NIH and CDC to care for the health of their citizens, and the health of those citizens is currently being funded by ourselves for ourselves,” Head said.

The protest included a series of demonstrations by ME/CFS patients and their loved ones at locations around the country and across the world, including: Washington, D.C., San Francisco, Philadelphia, London, Melbourne, Seattle, Atlanta, Boston, Dallas, Raleigh, Canada, the Netherlands and Belfast. Protesters in D.C. assembled outside the Department of Health and Human Services (HHS) headquarters. Other U.S. protesters assembled outside the regional HHS offices.

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Millions Missing demonstration in Washington, DC.  (Photo by Mary F. Calvert) #MillionsMissing demonstration in Washington, DC. (Photo by Mary F. Calvert)

The shoes represent the active lives lost by the owners…

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Finally, Newspapers Are Starting to Publish the ME/CFS Story

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Getting much needed attention to the plight of ME sufferers, and the issue of it being a physiological illness, has been an uphill battle. Julie Rehmeyer has written a first-person article that should get a lot of conversations started. (At least we can hope!) Please click on “Washington Post” to link to the article.

Sunshinebright

Julie Rehmeyer’s article about her own experience with ME/CFS, originally, and specially written for the Washington Post, has been picked up by the Chicago Tribune.

Julie Rehmeyer, science and math writer and contributing writer at Discover Julie Rehmeyer, science and math writer and contributing writer at Discover

Rehmeyer is a math and science writer in Santa Fe, N.M.  A version of this article appeared originally at the science writers’ blog The Last Word on Nothing.

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