Help comes from the most unexpected people


How people react to someone with ME can be heartening…

Fibro and M.E

I have had trouble writing the last few days. Not because of frozen fingers, I am used to that now. But when I type I am increasingly starting to type words out of sequence and this is very odd. I am either writing the word backwards or in a jumbled mess with the letters all in the wrong order. I have spent more time correcting words than writing anything the last few days and I am a little puzzled by it. I am guessing it is a neuro thing, my head has been fizzing none stop the last week and crackling more and more even without turning my head. It feels as though I have hundreds of fireworks fizzing in there, you know the moment before they explode that fizzing crackling sound they make? That is what is constantly filling the base of my neck and head. I don’t have…

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Mental Health and ME, Part One: ‘All in the Mind’


Thoughts on the Mental Health and ME misconception.

Dead Men Don't Snore

One of the most common misconceptions regarding ME is the idea that it is psychosomatic. This assumption stems in part from the fact that there is as yet no universally reliable diagnostic test, so it is often diagnosed on the basis of self-reported symptoms following the exclusion of other possible explanations. The problem is compounded by a large and very vocal group of psychiatrists who dismiss biomedical evidence of a physical cause of ME in favour of bio-psychosocial theories, claiming that ME is a form of personality disorder characterised by depression, exercise phobia and false illness beliefs.

Despite official recognition that ME is a neurological disease, the treatments sanctioned on the NHS (anti-depressants, graded exercise and behavioural therapies) have a primarily psychiatric focus, thereby reinforcing the perception that ME symptoms must be ‘all in the mind’. What little money the government spends on research into ME (far less than for…

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Give Up The Funk


As some of you may know, I suffer from ME, which is a chronic illness. What you may not know is that I have family and friends who suffer from mental illness and PTSD. The following re-blog is written from the heart of a beautiful soul. Please read to better understand and empathize with the world of people with mental illness and PTSD.

Fish Of Gold

Not the music variety, which is, clearly, totally awesome.

I’m talking about the PTSD variety of funk that I’ve been graced with since a monster sexually assaulted me as a child. Mingle PTSD with Major Depressive Disorder–which I may or may not have had regardless of sexual abuse based on my genetics and other factors–and you’ve got the ingredients for a major funk. I can’t seem to shake this latest funk. It’s been with me for a few months now. No matter what I do, it clings to me like a sheen of sweat.

I am depressed. That blows. It’s not all the time anymore, but it is persistent. It is an ever-present niggling little parasite gnawing on my brain.

Mental disorders are obnoxious. They are not easily diagnosed. If you go into a hospital with a broken arm, it’s fairly evident what’s wrong with you and what needs to…

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Meet Huck Finn the Therapy cat.


More proof that cats show love and comfort to those in need…

Kindness Blog

10-year-old tabby cat, Huck Finn, works at the Doernbecher Children’s Hospital as a therapy cat. There he helps sick children get better and brings comfort and smiles to the little patients.

Meet Huck Finn the therapy cat.

Huck Finn pops into patients rooms, where he will lay down with them and give them lots of love. Petting is known to be very therapeutic for the patients. Here he is seen with his human buddy, Landon, enjoying a very sweet cuddle.

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Thursday, March 27, 2014

Microbe Discovery Project Launches Crowdfunding for ME/CFS Microbiome Study

 (The following message comes from the Microbe Discovery Project. To find out more, go HERE.)

“I think that the microbiome is going to be where the action is [in ME/CFS] … I am really eager to pursue that work.” ~Dr. W. Ian Lipkin


In the past year our ME/CFS community has shown that it can rapidly raise hundreds of thousands of dollars for specific projects. After patients and supporters in Norway – with a population sixty times smaller than that of the US – raised $430,000 in 90 days for a clinical trial of Rituximab, a slew of US campaigns began crowdfunding and reached or exceeded their targets at astonishing speeds: $213,000 in 31 days for the documentary film Canary in a Coal Mine; $18,000 in 35 days for the documentary The Blue Ribbon; and $150,000 in 75 days for an Open Medicine Foundation study of Vitamin B12.

So, we can do this and we can do it quickly. Please donate now, from any country, so we can all benefit from the results of the study; Dr. Lipkin’s prestige is such that his findings will have international impact and help all of us. Tell your friends, your family and your local community to donate and spread the word.

Together, we can do this!

[Watch Dr. Lipkin describe this project here:]

ME/CFS: a devastating neuro-immune disease as disabling as multiple sclerosis, affecting one million Americans and 17 million people worldwide.

The study: a cutting-edge hunt for the causes of ME/CFS in the gut “microbiome” – the bacteria, viruses and fungi in the digestive system – led by “the world’s most celebrated virus hunter”, Dr W. Ian Lipkin at the world’s largest and most advanced center for microbe discovery and diagnosis at Columbia University in New York.

The payoff: a world-class study with the potential to swiftly lead to treatments using drugs, probiotics or exclusion diets.

Our challenge: to raise $1.27 million (£760,000; €910,000) to fund the project and do it fast! The scientists are ready to go and can complete and publish the study within 12 months. The sooner we fund it, the sooner it starts.

Donate HERE.

Paying it Forward: Gordon the Stuffed Pig


A lovely story about Lindsay, a warm, enthusiatic woman who believes in random acts of kindness…

Miss Four Eyes

Meet Lindsey! She’s a self proclaimed Professional Sunshine Spreader and she lives for Random Acts of Kindness. She wants to change the world into a more compassionate place, from her stories you can just tell that she’s definitely succeeding at it too. She’s guest blogging here today. Enjoy her post and don’t forget to visit her blog, Based On A True Story!

Yesterday, whilst preparing to enter the library for an afternoon of work, I caught a glimpse of a homeless man searching through the dumpsters seemingly quite intent on searching for some special object. I watched as his body language seemed to lift and stiffen in response to finding what he was looking for. He then dove halfway into the dumpster in order to fish something specific out.

When he emerged, his bright blue eyes were shining and his face was beaming with pride. I watched him stare…

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Calling all knitters: Penguin Foundation asking for tiny pullovers for injured birds


Friday, March 7, 2014, 3:29 PM –

If you’ve ever dreamed of becoming a clothing designer, you’re in luck.

The Penguin Foundation has put out an open call for tiny knit sweaters to be worn by some of the world’s cutest penguins.

Courtesy: Penguin Foundation Facebook

Courtesy: Penguin Foundation Facebook

While some of the contributions have been downright adorable (we’re a fan of the sweater adorned with the Penguin Books logo), the organization says their need for jumpers has noting to do with fashion.

“Knitted penguin jumpers play an important role in saving little penguins affected by oil pollution,” the foundation writes.

“A patch of oil the size of a thumb nail can kill a little penguin. Oiled penguins often die from exposure and starvation. Oil separates and mats feathers, allowing water to get in which makes a penguin very cold, heavy and less able to successfully hunt for food.”

When affected penguins are rescued from the wild, they are fitted with a tiny sweater that prevents them from preening and swallowing toxic oil as they wait to be cleaned.

Courtesy: Penguin Foundation Facebook                                                  Courtesy: Penguin Foundation Facebook
According to the foundation, 453 penguins were impacted by one of the more recent major oil spills near Phillip Island, thirteen years ago.

Ninety-six percent were saved are released back into the wild through the work of dedicated wildlife experts.

But oil spills aren’t the only issue.

Fishermen who dump waste while at sea can also be damaging to the tiny birds.

Knitters interested in helping the foundation are invited to download the pattern.

The jumpers are a quick, easy project that will appeal to most skill levels.

While we’re on the topic of penguins, we can’t resist showing you one of our favourite YouTube videos.

It’s from Matsue Vogel Park in southern Japan, which is home to countless penguins, tropical birds and owls.