Squirrel Gets Into The Halloween Spirit!

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The is one talented squirrel! Perhaps his name is Claude Mornuts?

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Solve ME/CFS Initiative Takes Part in #MillionsMissing Protest

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I have become home/bedbound with M.E. (Myalgic Encelphalomyelitis), which is why my blogging has all but disappeared. When my energy allows, I have been writing a new entry bit-by-bit with the hope of getting it online soon. In the meantime, I must reblog this important entry by Sunshinebright about the MillionsMissing Project. I did manage to tweet in support on May 25th, so I feel good about participating in my own small way. Many thanks to all who made the Project a successful protest. Now the test is to see where we go from here: did the people we needed to reach listen? Time, and possibly continueing the MillionsMissing Mission, will tell…

Sunshinebright

Solve ME/CFS Initiative President Carol Head said that following last year’s Institute of Medicine report, there is no reason for the federal government to drag its feet on aggressively funding research on the disease.

“It is the role of NIH and CDC to care for the health of their citizens, and the health of those citizens is currently being funded by ourselves for ourselves,” Head said.

The protest included a series of demonstrations by ME/CFS patients and their loved ones at locations around the country and across the world, including: Washington, D.C., San Francisco, Philadelphia, London, Melbourne, Seattle, Atlanta, Boston, Dallas, Raleigh, Canada, the Netherlands and Belfast. Protesters in D.C. assembled outside the Department of Health and Human Services (HHS) headquarters. Other U.S. protesters assembled outside the regional HHS offices.

seattlenetherlandscanada

Millions Missing demonstration in Washington, DC.  (Photo by Mary F. Calvert) #MillionsMissing demonstration in Washington, DC. (Photo by Mary F. Calvert)

The shoes represent the active lives lost by the owners…

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Let’s Play Catch-Up!

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Since the last time I blogged about myself, a lot of things have happened. I have been introduced to many new doctors and a few new tests. Thanks to Dr. Vera at NOVA, I am on some new medicines for ME and Fibromyalgia (which have practically gotten rid of my brain fog!) We are still experimenting with dosages to see if more improvement will be possible. (Fingers crossed!)

A dear friend who needs a place to stay will be moving in shortly. Lots of planning and packing going on between the two of us. Living in Florida will take some getting used to on her part. It took me two years to feel like I belonged here.

She will be arriving on Thanksgiving. The holidays will be particularly meaningful as we share the joy of being a family, as I consider her a sister. Very excited! (Also, can’t wait for her to see my jewelry studio!)

And speaking of jewelry…I have been keeping myself busy, designing and repairing pieces on commission. Here are pictures of some of my work…

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New pair of earrings made to replace old earring with missing partner. Used Swarovski crystal, freshwater pearls and gold-filled chain.

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Necklace made for opal and blue topaz pendant, supplied by client. My plan was to honor the pendant, not overwhelm it. Used agate, sterling silver beads, Japanese seed beads and Swarovski crystals. The client was trilled with the results and has ordered earrings to match.

 More pictures to come in the future.

As for my Kraftycat Creations Website, I am in the process of revamping – adding new, exciting products! This is a wonderful part of my life. I consider it therapy for a happier, healthier Fern. The “new and improved” Kraftycat Jewelry and Creations will be ready to view shortly.

The King of Bottle Top Mountain

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Proof that if you put your mind into doing a good deed, it will happen!

Kindness Blog

INSPIRING: Boy with special needs collects nearly 50,000 bottle caps for charity

Yuteru Domon, a 15-year-old junior high school student in Japan, has collected 49,512 plastic bottle caps for a charity that gives children in developing countries access to polio vaccines.

the king of bottle top mountain

Some kids are just exceptional. Yuteru Domon, a special needs student at a junior high school in Date City, north of Fukushima, took charity to a whole new level by collecting almost 50,000 bottle caps all by himself to save children from polio. Starting last June, his goal was to get polio vaccines for 50 children in developing countries. With 800 caps equalling one vaccination, his goal was to collect 40,000. By the time winter vacation rolled around, Yuteru achieved that goal, but he kept on going. He asked for help from his schoolmates, and they brought him whatever caps they could find. The 49,512 bottle caps netted him…

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Crowdwish #100 Was Actioned Today!

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Today’s Crowdwish was ‘I wish for a braver and kinder world, where we can all look forward to a better tomorrow’ – from Ashley Craig (See below for more about her – very inspiring!)

Some encouraging facts – there’s actually a wealth of evidence that the world is a better place than it’s ever been.

  1. There are half as many poor people in the world as there were in 1990.
  2. In the last half century, China’s real income per person has gone up eightfold, India’s has quadrupled, and Brazil’s has almost quintupled.
  3. A baby born in 1960 had a 20% chance of dying before her 5th birthday. For a child born today, it’s under 5%.
  4. Globally, the number of deaths by tuberculosis has diminished by half and the number of deaths from measles has decreased by 70 percent. Even the number of deaths due to HIV and AIDS has dropped by 25 percent.
  5. Around 750 million fewer people live in extreme poverty (defined as $1.25 or less per day) than in 1981 – a decrease from 40% to 14%.
  6. The world is getting more and more peaceful; the number of deaths by civil wars or wars between countries per 100 thousand world citizens has decreased drastically in the past few decades, from almost 300 during World War II, to almost 30 during the Korean War, to less than 10 in the seventies and eighties. In the 21st century, it’s less than 1 death per 100 thousand.
  7. Homicides are in decline. In 2001, 557,000 people worldwide were killed. Seven years later that number was 289,000. And the decline continues, according to the United Nations.
  8. Between 1995 and 2011 there was a 20 percent decline in “observable gender inequalities,” according to the United Nations. IMF figures show a consistent decline in global income inequality between the sexes.
  9. Ten years ago, gay marriage didn’t exist in the United States; now 38 percent of Americans live in a state where marriage between gay men or lesbians is allowed.
  10. We have True Detective now.

 

The facts are clear; slowly but surely, the world is becoming a better place, it just doesn’t always feel that way; one of the consequences of the negativity bias in the media maybe. But the future depends on what you do today, and over in New Jersey, the person who made today’s wish is doing something brilliant.

Ashley Craig was the victim of bullying during her middle and high school years, but found the courage to stand up; not just for herself, but for others too.

Just 18, her story is here – she has created a brilliant charity that implements anti-bullying programs in schools in America and so far these have been delivered to an incredible 10,000 students! 

In order for us to help Ashley fulfill her own wish of a ‘better and kinder world’ we asked if we could help her charity, or whether she would prefer a gift for herself. Unsurprisingly, she chose her charity and so we are helping to design and produce magnetic bumper stickers to spread the word about what she is trying to achieve. You can see them below; they will be produced and shipped to Ashley in the coming weeks.

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And a special THANK YOU to all who have helped out with my Crowdwish that was actioned ( please visit  http://www.gofundme.com/886ae8   to learn more) I appreciate anything you can do  – re-blogging, passing it on and giving from your heart if possible.

Much love….    Fern 🙂

 

A NEW PROJECT BY DR. LIPKIN – VERY EXCITING!

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From: http://cfstreatment.blogspot.com/

ONWARD THROUGH THE FOG

Thursday, March 27, 2014

Microbe Discovery Project Launches Crowdfunding for ME/CFS Microbiome Study

 (The following message comes from the Microbe Discovery Project. To find out more, go HERE.)
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“I think that the microbiome is going to be where the action is [in ME/CFS] … I am really eager to pursue that work.” ~Dr. W. Ian Lipkin

WE CAN DO IT!

In the past year our ME/CFS community has shown that it can rapidly raise hundreds of thousands of dollars for specific projects. After patients and supporters in Norway – with a population sixty times smaller than that of the US – raised $430,000 in 90 days for a clinical trial of Rituximab, a slew of US campaigns began crowdfunding and reached or exceeded their targets at astonishing speeds: $213,000 in 31 days for the documentary film Canary in a Coal Mine; $18,000 in 35 days for the documentary The Blue Ribbon; and $150,000 in 75 days for an Open Medicine Foundation study of Vitamin B12.

So, we can do this and we can do it quickly. Please donate now, from any country, so we can all benefit from the results of the study; Dr. Lipkin’s prestige is such that his findings will have international impact and help all of us. Tell your friends, your family and your local community to donate and spread the word.

Together, we can do this!

[Watch Dr. Lipkin describe this project here: https://www.youtube.com/watch?v=z_v3bfbBupA]

ME/CFS: a devastating neuro-immune disease as disabling as multiple sclerosis, affecting one million Americans and 17 million people worldwide.

The study: a cutting-edge hunt for the causes of ME/CFS in the gut “microbiome” – the bacteria, viruses and fungi in the digestive system – led by “the world’s most celebrated virus hunter”, Dr W. Ian Lipkin at the world’s largest and most advanced center for microbe discovery and diagnosis at Columbia University in New York.

The payoff: a world-class study with the potential to swiftly lead to treatments using drugs, probiotics or exclusion diets.

Our challenge: to raise $1.27 million (£760,000; €910,000) to fund the project and do it fast! The scientists are ready to go and can complete and publish the study within 12 months. The sooner we fund it, the sooner it starts.

Donate HERE.

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