I have become home/bedbound with M.E. (Myalgic Encelphalomyelitis), which is why my blogging has all but disappeared. When my energy allows, I have been writing a new entry bit-by-bit with the hope of getting it online soon. In the meantime, I must reblog this important entry by Sunshinebright about the MillionsMissing Project. I did manage to tweet in support on May 25th, so I feel good about participating in my own small way. Many thanks to all who made the Project a successful protest. Now the test is to see where we go from here: did the people we needed to reach listen? Time, and possibly continueing the MillionsMissing Mission, will tell…
Solve ME/CFS Initiative President Carol Head said that following last year’s Institute of Medicine report, there is no reason for the federal government to drag its feet on aggressively funding research on the disease.
“It is the role of NIH and CDC to care for the health of their citizens, and the health of those citizens is currently being funded by ourselves for ourselves,” Head said.
The protest included a series of demonstrations by ME/CFS patients and their loved ones at locations around the country and across the world, including: Washington, D.C., San Francisco, Philadelphia, London, Melbourne, Seattle, Atlanta, Boston, Dallas, Raleigh, Canada, the Netherlands and Belfast. Protesters in D.C. assembled outside the Department of Health and Human Services (HHS) headquarters. Other U.S. protesters assembled outside the regional HHS offices.
The shoes represent the active lives lost by the owners…
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I have given this link to my daughter, as she was just stating today that she thinks she may have ME also. It may just be the Autism. We have noted several times that both she and I share certain “traits” in our illnesses. This may explain why.
I follow “Onward Through the Fog,” a blog on blogspot, authored by Erica Verrillo, a talented person who suffers from ME (Myalgic Encephalomyelitis). Her reports and research are top notch.
In this particular posting, Erica reports on the similarity of some findings affecting Autism and ME/CFS. These findings have to do with brain inflammation.
A John Hopkins study acts as confirmation that excitotoxicity caused by chronic inflammation is central to autism.
A great question asked by Sunshinebright – #ME Where are we? A question I would like a great answer to.
Alas, I am doomed to be disappointed. As Sunshine pointed out, 2015 started out with a lot of optimism. M.E. was officially declared a real, physical disease by the IOM. This was a big win, as an estimated two million sufferers in the U.S alone, including myself, have been treated horribly by the medical establishment. M.E. had never been taught in medical school and doctors typically would “poo-poo” the symptoms effecting M.E. patients. We have been labeled as hypochondriacs and being mentally ill. The outcome of the IOM’s report would surely change things for the better – this was the hope. More research dollars to find a biomarker and, hopefully, a treatment that works (if not a cure.)
The truth: Doctors still have no clue what M.E. is. Money for research is still not coming from the NIH. Just this month, Dr. Ian Lipkin , a researcher, resorted to eating hot peppers in a challenge to raise funds. Very sad.
During the first half of this year, there was much going on in the Health and Human Service (HHS) Department and regarding ME (Myalgic Encephalomyelitis): we had the IOM’s (Institute of Medicine) outstanding, positive report (in my opinion) and then there was the P2P (Pathways to Progress) report. The former was indicative of forward movement in the cause of ME and the latter, was not.
We’ve been ignored.
There were stand-offs, delays, and hidden refusals when the FOIA was used to obtain documents vital to the ME cause.
And where are we? After all the hullabaloo and interviews of patients including Laura Hillenbrand, author of “Seabiscuit,” Jen Brea, co-developer of a movie, “Canary in a Coal Mine,” I ask again:
Where are we?
It looked like we had some strong headway for a while, in getting ME recognized as a VERY SERIOUS disease (which it is of course), and…
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As someone with ME, and as someone with a daughter on the Autism Spectrum, this discovery is one of the most important medical events in recent history. Times are changing and researchers are finally picking up the pace studying neuro-immune issues. As my ME progresses, the hope for better understanding of the disease and better treatments may see fruition. Many with ME, MS, and Autism, to mention some of the many misunderstood neuro-immune diseases suffered by millions, might see a flicker at the end of the tunnel.
“They’ll have to change the textbooks.” This statement, by Kevin Lee, PhD, Chairman of the UVA Department of Neuroscience, is the result of a study at the University of Virginia School of Medicine. The study, awarded to the UVA Health System and funded by the National Institutes of Health (NIH), has shown there are heretofore undetected lymphatic vessels connecting the brain to the immune system.
Researchers knew there was a connection between the brain and immune system, but the vessels were completely hidden. Now, there are many new angles to exploring neurological disease.
This is a stunning discovery. It is difficult to explain how these vessels in the brain were overlooked when the lymphatic system was explored. New avenues of discovery are now possible and beneficiaries might be MS, Autism, Alzheimer’s and maybe even…
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I consider my Mom a hero. The advocating for ME and Autism she does is amazing. She is the one person I can count on to show understanding and unconditional love to a daughter who’s road is rocked by chronic illness. All my love, Mom, today and always.
The following story is from “Time”
Written by @tcberenson
From saving a drowning couple to rescuing kids from a bear
It’s true that every mother is a hero, which is why we have Mother’s Day. It’s just one small day of the year for people to appreciate everything mothers do for their families. But it’s also true that all acts of maternal heroism are not created equal. Dealing with the daily challenges of raising kids is one thing, but saving children from a bear is quite another. So here, in honor of Mother’s Day, we present five hero moms of the year.
Cheryl Treadway was being held hostage with her children in Florida and figured out how to escape — using an order from Pizza Hut.
With Treadway’s boyfriend holding her and her three children their home at knifepoint this week, Treadway ordered from Pizza Hut on her phone and asked, in the comments section, for someone to call 911.
Thanks to Treadway’s creative thinking, an employee at Pizza Hut called the police, who then rescued the family.
That resolve ended up being life-saving when she saw a couple drowning off the coast of Cancun last December. There was no lifeguard on duty, so Loiselle, a single mother of two, dove in herself, swam out and brought the couple safely to shore.“Words cannot describe my gratitude but I’ll try,” the man said in an interview. “You saved my girlfriend’s life and most certainly mine too.”
Tamara Loiselle and son, reading a letter of graditude from the couple.
Morgan Stone, mother of five, had only seconds to spare to get her entire family out of their Indiana home before it was engulfed in flames last December.“It took me a second to really realize what was happening. When I opened the bedroom door and it was full of smoke, it took me a minute to grasp that this was a serious house fire,” Stone said.She sprang into action and got her five kids, her father-in-law and her pets out of the house before the whole structure burned.“He says I’m a hero,” Stone said of her fiancé, “But I don’t think I’m a hero, I’m just a mom who got my kids out safely—nothing means more to me than them.”
The Mom Who Saved Her Neighbor’s Kids From a Bear
Candace Gama saw her neighbor’s 6-year-old sons waiting for their school bus. Then she saw the bear.
The black bear was about 20 yards away, so Gama drove her car between the bear and the kids and yelled at them to get in the car. Then to speed things up, she grabbed the boys by their backpacks and dragged them inside.
According to a local Montana newspaper, Gama’s 5-year-old daughter said her mom was the hero of the day.
The Pregnant Mom Who Saved Her Family After a Terrible Car Crash
Erika Grow’s car hit black ice on the road in Wyoming last November and flipped three times, throwing her husband and sister from the car and leaving her two young children trapped in the back.
Even though she was eight months pregnant, Grow was able to clamber to the backseat and unbuckle her children, ages 3 and 21 months. She put them in suitcases to keep them warm in the freezing Wyoming weather.
Grow’s husband and sister went to the hospital, but her two children and unborn baby were unharmed.
Photo taken after birth of the newest Grow family member.
With the optimism I felt upon hearing the outcome of the IOM report this week, it is sad to learn the report is being shut out in the UK.
While the ME community is absorbing the finer details of the recently published report by the US’s Institute of Medicine (IOM), the silence surrounding the IOM report in the UK media is almost deafening. Whatever one’s opinion regarding the finished product, this is a significant study produced by a major and respected United States organisation, part of the Unites States National Academies, concerning a disease that affects between 100,000 and 250,000 UK citizens. There has been extensive coverage in various media outlets in the US but reporting in the UK has been near to non-existent. Call me a cynic but had the IOM study concluded ME was a predominantly psychological condition and renamed it ‘Cannot be bothered to exercise syndrome’, I have no doubt, following heavy promotion by the Science Media Centre (SMC) and the likes of Wessely and White, the report would have been plastered all over the British…
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A young ME sufferer, made wise beyond his years, writes a poignant letter to King Harald of Norway.
Letter to King Harald of Norway from Martin and 58 other young people with M.E.
ME mum’s confessions proudly presents an important letter to King Harald from Martin (17). The letter is also signed by 58 other children and youngsters with M.E. (Norwegian original)
A shortened version of the letter was published in the leading Norwegian newspaper aftenposten.no and was also in the printed paper. In the paper, this was an important contribution to the ongoing debate on M.E. We recommend reading the full version. Both the letter and the following quotes make a strong impression.
In addition to the letter, the King received all the senders’ names and how long they’ve been sick, a list of 47 quotes and 5 pages with photos of the young ones. We have chosen to remove personalia here. The original was sent to the royal castle December 7th
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Most of us are sitting around a table, sharing a festive meal with family and friends, enjoying each others company.
Today, I am welcoming a friend into my home and into my family. For this, I am thankful. Thankful for being able to do this for a woman whom I consider a sister and who has been there for me many a time. Thankful that, while I can help her, she is willing to help me as well. Thankful that she understands my illness and treats me the same as she always has – with love and respect.
Today, I give thanks for all of the understanding, love and support I receive from my family. The road I travel would be a lot more difficult without it.
Today, I give thanks to the people with ME/CFS, who are using the little bit of energy they have, and their supporters, to advocate for this invisible illness. Together we are fighting an uphill battle – one that has been made necessary by neglect and abuse from the medical community. I am thankful that I have enough energy to join the fight.
In fact, everyday I am thankful for all of the above and more.
Thank you for reading this blog!
A poster – with a Dalek!
Get me a Dalek! 😀