Solve ME/CFS Initiative Takes Part in #MillionsMissing Protest

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I have become home/bedbound with M.E. (Myalgic Encelphalomyelitis), which is why my blogging has all but disappeared. When my energy allows, I have been writing a new entry bit-by-bit with the hope of getting it online soon. In the meantime, I must reblog this important entry by Sunshinebright about the MillionsMissing Project. I did manage to tweet in support on May 25th, so I feel good about participating in my own small way. Many thanks to all who made the Project a successful protest. Now the test is to see where we go from here: did the people we needed to reach listen? Time, and possibly continueing the MillionsMissing Mission, will tell…

Sunshinebright

Solve ME/CFS Initiative President Carol Head said that following last year’s Institute of Medicine report, there is no reason for the federal government to drag its feet on aggressively funding research on the disease.

“It is the role of NIH and CDC to care for the health of their citizens, and the health of those citizens is currently being funded by ourselves for ourselves,” Head said.

The protest included a series of demonstrations by ME/CFS patients and their loved ones at locations around the country and across the world, including: Washington, D.C., San Francisco, Philadelphia, London, Melbourne, Seattle, Atlanta, Boston, Dallas, Raleigh, Canada, the Netherlands and Belfast. Protesters in D.C. assembled outside the Department of Health and Human Services (HHS) headquarters. Other U.S. protesters assembled outside the regional HHS offices.

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Millions Missing demonstration in Washington, DC.  (Photo by Mary F. Calvert) #MillionsMissing demonstration in Washington, DC. (Photo by Mary F. Calvert)

The shoes represent the active lives lost by the owners…

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Body Image Experiment

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For many decades, the media has idealized their image of the “perfect woman”, going so far as to photo-shop pictures of models to inhuman proportions. Culture dictates that looks are important. The message comes across to females of all ages and shapes that they do not measure up. For many women, this expectation can damage their self-esteem.
In recent years, a backlash has been building against the media’s message, and rightly so. Many women, along with some men, are speaking out, their message being that beauty comes in all shapes and sizes. It is time for us to be comfortable in our own skin.
In the following video, presented by HLN, Amy Pence-Brown puts her message forth by stripping down to her underwear in the middle of an outdoor market. The response is heartwarming.

Shower Time for Woody

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I know it has been a bit since last posting anything – a lot has gone on, some good, some not so much.

However, instead of going into all that now, I would rather have a laugh, as laugh therapy is a requirement in my life. It should be in yours also!

Today’s “medicine” is brought to you by Woody, a cat (of course!) who obviously appreciates a good shower.

 

#ME Where Are We?

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A great question asked by Sunshinebright – #ME Where are we? A question I would like a great answer to.

M.E/CFS awareness -

Alas, I am doomed to be disappointed. As Sunshine pointed out, 2015 started out with a lot of optimism. M.E. was officially declared a real, physical disease by the IOM. This was a big win, as an estimated two million sufferers in the U.S alone, including myself, have been treated horribly by the medical establishment. M.E. had never been taught in medical school and doctors typically would “poo-poo” the symptoms effecting M.E. patients. We have been labeled as hypochondriacs and being mentally ill. The outcome of the IOM’s report would surely change things for the better – this was the hope. More research dollars to find a biomarker and, hopefully, a treatment that works (if not a cure.)

The truth: Doctors still have no clue what M.E. is. Money for research is still not coming from the NIH. Just this month, Dr. Ian Lipkin , a researcher, resorted to eating hot peppers in a challenge to raise funds. Very sad.

Don't be surprised...

Sunshinebright

During the first half of this year, there was much going on in the Health and Human Service (HHS) Department and regarding ME (Myalgic Encephalomyelitis):  we had the IOM’s (Institute of Medicine) outstanding, positive report (in my opinion) and then there was the P2P (Pathways to Progress) report.  The former was indicative of forward movement in the cause of ME and the latter, was not.

We’ve been ignored.

There were stand-offs, delays, and hidden refusals when the FOIA was used to obtain documents vital to the ME cause.

And where are we?  After all the hullabaloo and interviews of patients including Laura Hillenbrand, author of “Seabiscuit,” Jen Brea, co-developer of a movie, “Canary in a Coal Mine,” I ask again:

Where are we?

It looked like we had some strong headway for a while, in getting ME recognized as a VERY SERIOUS disease (which it is of course), and…

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Friday Funday

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Because it is Friday – here are some cute and funny memes to start the weekend off right – with a laugh!

 

funny memes of cats -

(Takes Years of training!)

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(Those are the cutest marshmallows I’ve ever seen!)

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(According to my cats, all dogs are.)

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Funny Cat Meme

(Very funny – that was me trying to cook dinner…)

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(The Pooper Scooper strikes again!)

Funny <3 Cat meme

Surprise!

Every cat...

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Genius!

Best buds.

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And I hope your weekend is beautiful too!  🙂

Trump Your Cat

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Found this on Instagram and had to “shair”. (Seems all the cool cats know: Donald Trump -meh…. That hair? Purr-icless!)

Donald Purrump

1.Brush your cat 2.Form the hair you brushed into a toupee 3.Place toupee on cat and 📷 4.Share & tag @trumpyourcat, DM, or #trumpyourcat >^.~.^<

"I don't get along with rich people. I get along with the middle class and the poor people better than I get along with the rich people" - @realdonaldtrump 📷 via @ironelisa on twitter @trumpyourcat

"Boycott @Macys and @Univision. MAKE AMERICA GREAT AGAIN!"- @realdonaldtrump 📷 via @beepie

"Laziness is a trait in blacks" (and long haired tabby cats) - @realdonaldtrump 📷 via @dustandstars. Follow @trumpyourcat on twitter too >^.~.^<

"I have never seen a thin person drinking diet Coke" - @realdonaldtrump 📷 via @movielous

"I do not wear a wig, my hair is 100% mine." @realdonaldtrump 📷 via @puckthemodel

"See the way they're kissing your ass already? That's what happens when you're a boss." @realdonaldtrump 📷 via @sara._.mari

"Do you mind if I sit back a little? Because your breath is very bad." @realdonaldtrump 📷 via @sumares

"The beauty of me is that I'm very rich" @realdonaldtrump 📷 via @spongemom >^.~.^<

😹 @trumpyourcat on @washingtonpost this afternoon http://wapo.st/1Mk7GDP

"All of the women on 'The Apprentice' flirted with me - consciously or unconsciously - that's to be expected." @realdonaldtrump 📷 via @thecatball

"You know, it doesn't really matter what [the media] writes as long as you've got a young and beautiful piece of ass" - @realdonaldtrump 📷 via @evilgeniud

@realdonaldtrump "HILLARY PRESIDENCY WILL CAUSE ‘CRIME WAVE LIKE YOU’VE NEVER SEEN" 📷 via @mrmeowwy

@realDonaldTrump: Stop saying I went bankrupt. I never went bankrupt 📷 via @oskar_the_blind_cat

@realDonaldTrump: Univision apologized to me but I will not accept their apology. I will be suing them for a lot of money. 📷 via @mrmeowy

@realDonaldTrump: I appreciate the GOP candidates who remain strong on border security. They know I am right. 📷 via @whenwillallthis

"Show me someone without an ego, and I'll show you a loser." - @realdonaldtrump 📷 via @melmcclure

"I have so many websites. I have them all over the place. I hire people ... it costs me three dollars." - @realdonaldtrump 📷 via @clgordonwrites

"An 'extremely credible source' has called my office and told me that @BarackObama's birth certificate is a fraud." - @realdonaldtrump 📷 via @lashernation

"We have a 5 billion dollar website. I have so many websites ... I hire people. They do a website. It costs me three dollars." - @realdonaldtrump 📷 via @yaycha

"When was the last time anyone saw us beating, let's say, China in a trade deal? They kill us. I beat China all the time" - @realdonaldtrump 📷 via @jakebot9000

“It’s freezing and snowing in New York. We need global warming!” - @realdonaldtrump 📷 via @mandiwebb78 #trumpyourcat

“I think the only difference between me and the other candidates is that I’m more honest and my women are more beautiful.” - @realdonaldtrump 📷 via @learntoread

"The U.S. has become a dumping ground for everybody else's problems. Thank you. It's true." - @realdonaldtrump

"I will build a great wall — and nobody builds walls better than me, believe me —and I’ll build them very inexpensively. I will build a great, great wall on our southern border, and I will make Mexico pay for that wall. Mark my words." - @realdonaldtrump