Brain Inflammation – Its Similarity In Autism and ME

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I have given this link to my daughter, as she was just stating today that she thinks she may have ME also. It may just be the Autism. We have noted several times that both she and I share certain “traits” in our illnesses. This may explain why.

Sunshinebright

I follow “Onward Through the Fog,” a blog on blogspot, authored by Erica Verrillo, a talented person who suffers from ME (Myalgic Encephalomyelitis).  Her reports and research are top notch.

In this particular posting, Erica reports on the similarity of some findings affecting Autism and ME/CFS.  These findings have to do with brain inflammation.

A John Hopkins study acts as confirmation that excitotoxicity caused by chronic inflammation is central to autism.
activated microglia
Excitotoxicity has been put forth as a mechanism of ME/CFS by a number of clinicians and researchers, including Drs. Paul Cheney, Jay Goldstein, Morris and Maes, Martin Pall, and, most recently, Jarred Younger.

 

 

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#ME Where Are We?

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A great question asked by Sunshinebright – #ME Where are we? A question I would like a great answer to.

M.E/CFS awareness -

Alas, I am doomed to be disappointed. As Sunshine pointed out, 2015 started out with a lot of optimism. M.E. was officially declared a real, physical disease by the IOM. This was a big win, as an estimated two million sufferers in the U.S alone, including myself, have been treated horribly by the medical establishment. M.E. had never been taught in medical school and doctors typically would “poo-poo” the symptoms effecting M.E. patients. We have been labeled as hypochondriacs and being mentally ill. The outcome of the IOM’s report would surely change things for the better – this was the hope. More research dollars to find a biomarker and, hopefully, a treatment that works (if not a cure.)

The truth: Doctors still have no clue what M.E. is. Money for research is still not coming from the NIH. Just this month, Dr. Ian Lipkin , a researcher, resorted to eating hot peppers in a challenge to raise funds. Very sad.

Don't be surprised...

Sunshinebright

During the first half of this year, there was much going on in the Health and Human Service (HHS) Department and regarding ME (Myalgic Encephalomyelitis):  we had the IOM’s (Institute of Medicine) outstanding, positive report (in my opinion) and then there was the P2P (Pathways to Progress) report.  The former was indicative of forward movement in the cause of ME and the latter, was not.

We’ve been ignored.

There were stand-offs, delays, and hidden refusals when the FOIA was used to obtain documents vital to the ME cause.

And where are we?  After all the hullabaloo and interviews of patients including Laura Hillenbrand, author of “Seabiscuit,” Jen Brea, co-developer of a movie, “Canary in a Coal Mine,” I ask again:

Where are we?

It looked like we had some strong headway for a while, in getting ME recognized as a VERY SERIOUS disease (which it is of course), and…

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14 Wonderful, Unique and Funny Ways Kids Have Explained Disability

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-Fern

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http://themighty.com

At The Mighty, we know that sometimes kids can offer us a brand new perspective on the world. So, we decided to ask our readers who are parents to share some of the wonderful, unique and funny things their kids have said about their disability.

These were your answers:

1. “‘I’m not Autistic, I’m Cara.’ My now 9-year-old daughter said that when someone called her autistic instead of saying she had autism. Well played, baby girl. Well, played.” – Kim Vivanco

2. “My cousin says she has ‘Up syndrome’ because she’s happy, not sad.” – Cassie Collins

3. “My oldest son is in fourth grade and decided he couldn’t do his math homework because of autism. Nice try, kiddo.” – Stephanie France Fry

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4. “My husband’s student once said, ‘I know I’m special, but why do they call me Ed?’ – Liz Gorgue Rosas

5. “My 3-year-old daughter tells others she has ‘terrible palsy.’ One of these days she’ll be able to pronounce ‘cerebral,’ but today is not that day.” – Ashley Mobley

6. “Another child asked my daughter what her hearing aids were for. She responded, ‘They are like glasses for my ears!’” – Kerri Goff

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7. “My 4-year-old daughter overheard her father and me talking about her autism diagnosis. She turned and looked at us and enthusiastically yelled, ‘I awesome!’ Best mispronunciation she has ever made.” — Kendra Hopkins

8. “Our daughter sometimes wears a gastric drain bag to empty food that is too much for her to handle. She gets a lot of questions and stares. Once, when she was about 6 years old, a woman after a long hard stare said ‘OK, I have to ask, what the heck is that?’ Our daughter, without skipping a beat replied, ‘It’s my own personal slushy, you want to try some?’ I could have exploded trying to hold in my laughter. ” — Kate Sytsma

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9. “Our oldest son, Xavier said to a friend, ‘My brother, Cooper, has autism. Do you know what that means?’

Friend: ‘No.’

Xavier: ‘It means he likes his hotdogs not touching his French fries and that we give him extra time getting out of the car.’

Friend: ‘That’s cool.’

Xavier: ‘You know what else is cool about autism?’

Friend: ‘What?’

Xavier: ‘Everything. Especially Cooper.’”  Makenna Dubay

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10. “My son has worn ankle-foot orthotics for years. He used to be embarrassed and hide them under pants. If someone would say something he would cry. Then, one day, he chose to wear shorts. He was asked by a child what happened to his legs and he said, without hesitation, ‘I fell off a cliff and lived to tell about it.’ The child’s eyes got big and then he walked away, and I turned my head and just about choked through my laughing. Through the sarcasm, my son turned a corner on his disability!” — Julie Bayles

11. “One year at camp another camper asked my daughter, ‘Why do you use a wheelchair?’ to which she replied, ‘Because I’m awesome.’ When that response wasn’t enough, the kid looked at a counselor and said, ‘No, really, why does she use that?’ The counselor then said, ‘Because she gets tired quicker than you… and because she’s awesome.’” — Alexis Snyder

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12. “I have tics, and I don’t mean the bugs.” —  Kristy Madden Kassebaum

13. “My brothers and I all have autism, but this was my youngest brother’s way of explaining his Asperger’s syndrome:  ‘If my dad’s head was a golf ball, my head would be a beach ball.’ Nobody understood what he meant except him and me, and that’s all that matters.” — Hannah Walker

14. “God had to level the playing field a bit for everyone else, so he gave me spina bifida.” — Jake Siem

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That Is Love

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Inspirational QuoteWhat do I love about this inspirational quote? It is about all kinds of love: romantic, friendship, empathetic. Watching your child laugh and play can fill your heart. Your cat purring with contentment can do the same. A stranger dancing with joy at a concert makes you love the show all the more. When you can fill your life with love and happiness just by feeling it through another, you have won the love lottery.  ❤

A Black Cat Story-“Love Knows No Color”

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Everyday, I go onto “The Animal Rescue Site” and, by simply clicking a button, feed a shelter animal. I also read rescue stories, tweeting some of the better ones.

This story I could not help but re-blog. As a parent of two lovable black furbabies (amongst others), I know the truth – that superstitions are just that – superstitions. Nothing could be further from the reality of having a black cat in your life. In fact, they bring luck into your lives by providing you with unconditional love! (Something that is not guaranteed in other parts of your life. Now, isn’t that worth an adoption?)

“Love Knows No Color”

A few months ago, I moved half way across the country to get my Master’s degree. I come from a family of cat lovers and have always had a fur baby around. Moving away from my family (my feline family as well) was rough and from the first day I’d moved in I wanted a kitty. After a month or so, I couldn’t take not having a pet anymore, so I convinced my boyfriend into allowing me just to look.

We noticed a black kitty who had been sitting in it’s foster’s lap the whole time we were there looking around. I leaned over to pet him and she allowed me to hold him. It was like love at first sight. He allowed my boyfriend and I to snuggle up to him and he snuggled right back. We asked about his story and his foster said that his mother was feral and that she’d saved her and her kittens. His colorful siblings were all adopted out the first couple weeks, but he stuck around for months after them. She explained that black cats are harder to adopt out due to the stigma that’s still attached to them. After that I was all in on getting Sunny and since then he has brought so much joy to my life.

Every morning Sunny wakes me up with kisses on my face and everyday I get home from class, he’s running down the hall to the front door greeting me with meow’s of how his day went. I can’t even image how people couldn’t want such a loving little kitty based on color. It’s sad to know that black cats are less likely to be adopted based on color when what matters is their personality.

When adopting keep in mind that black cats need love too!

Anonymous
Lubbock, TX

 

 

A Note Was Found At The Airport That Said “Read Me.”

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Everyone should read this. If it applies to you, try to take it in and know it for truth. I have walked these shoes, been freed and, even with illness, am happier than I have ever been. I have found myself and love the person I am. My gift to you is the gift of reblogging “Jamie’s” gift.

Kindness Blog

A man came across a folded piece of paper while he was at San Francisco airport that said ‘read me‘ on the front.  How could anyone possibly resist that invitation?  He knew he just had to look.  So, he did.

And what he discovered inside was surprising and wonderful…

note from a stranger

This is what was inside… (scroll down to read a typed up version)

note from a stranger

“I recently left an emotionally abusive relationship After months of insults I wont repeat, false accusations, lies, delusions, broken mirrors, nightly battles…. I left. I know that I was being poisoned by each day that I stayed. So with a heavy heart, I left my lover of three years, knowing that I had already put it off too long. At first he begged, then he cursed, but eventually he packed his bags and faded out of my life like a bad dream.

For the first few weeks, my…

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Compassion (and the lack of it) in the medical field

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Treated badly by a doctor? Just because they went to medical school does not mean you have to put up with their crappy attitude. Remember that, as a patient, you have the right to “fire” that idiot and find a true professional!

I have personally been through many bad doctors before finding the ones I now see on a regular basis – because they 1) know their stuff and 2) treat me with compassion and understanding.

I will always remember the neurologist I went to after getting Bells Palsy. My mother and I were shown into his office, where two chairs sat against the wall, several feet away from his desk. We pulled the chairs closer to the desk and sat waiting. The first thing this “doctor” did was yell at us for moving the chairs and made us put them back. He then went through an “examination” of me – without touching me and giving me looks of disgust (half of my face was drooping and paralyzed.) No treatment or medication was suggested and we were bluntly told to leave and make another appointment. My mother and I were in complete shock. I found another doctor to go to and put in a complaint to my insurance company.

That was almost 16 years ago and he is still practicing.

The following blog is another person’s trials and tribulations with a medical professional, very well written and definitely worth a read. Please enjoy her writing.