M.E. Demonstration in San Francisco on May 12th: “30 Years of Neglect”

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ME Awareness Day is May 12th. If you are in San Francisco, there is a demonstration. If you are not in that area (like me) just spreading the word always helps!

A rainbow at night

Today’s post comes to you with a mix of emotions. Hope. Grief. Joy. Bittersweet, if there were ever a scenario in which to feel it.

Erica Verrillo e-mailed me last week to share some important news. For this year’s awareness day on May 12th, there will be a demonstration at HHS headquarters in San Francisco to raise awareness of myalgic encephalomyelitis. The information reads as follows:

JOIN US IN SAN FRANCISCO ON MAY 12!!
 
On Monday, May 12th from noon-1PM there will be a gathering at HHS headquarters at the Federal Building (90 Seventh Street)
 
“30 Years of Neglect”
 
30 years ago the town of Incline Village, Nevada was struck with myalgic encephalomyeltitis (ME), a neurological disease that HHS derisively named “chronic fatigue syndrome.” Since then, over a million people have been struck – worldwide, between 17- 20 million. In one quarter of the cases – 250,000 people…

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