If you are not totally, unshakably moved by this statement on “living” with ME…
Confusion, frustration, and pain will it bring
Separation will come from friends who are near
Relationships lost with those who are dear
Time will be wasted, hour by hour
Days full of purpose, beyond your power
Your body decays but your heart is still there
Fighting against all that needs repair
Loved ones face each day filled with suspense
Good day or bad? It all makes no sense.
Yes, life goes on, sometimes too long
when the time to move on has come and then gone.
The above is a poem I wrote several years ago as I reflected on life with ME. This illness is incredibly isolating. It is also unbelievably limiting. ME steals your health, your friends, your career, and much more. Sometimes it feels like it steals your sanity, too!
I’ve often heard this illness referred to as…
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