#ME Where Are We?

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kraftycatcreations:

A great question asked by Sunshinebright – #ME Where are we? A question I would like a great answer to.

M.E/CFS awareness -

Alas, I am doomed to be disappointed. As Sunshine pointed out, 2015 started out with a lot of optimism. M.E. was officially declared a real, physical disease by the IOM. This was a big win, as an estimated two million sufferers in the U.S alone, including myself, have been treated horribly by the medical establishment. M.E. had never been taught in medical school and doctors typically would “poo-poo” the symptoms effecting M.E. patients. We have been labeled as hypochondriacs and being mentally ill. The outcome of the IOM’s report would surely change things for the better – this was the hope. More research dollars to find a biomarker and, hopefully, a treatment that works (if not a cure.)

The truth: Doctors still have no clue what M.E. is. Money for research is still not coming from the NIH. Just this month, Dr. Ian Lipkin , a researcher, resorted to eating hot peppers in a challenge to raise funds. Very sad.

Don't be surprised...

Originally posted on Sunshinebright:

During the first half of this year, there was much going on in the Health and Human Service (HHS) Department and regarding ME (Myalgic Encephalomyelitis):  we had the IOM’s (Institute of Medicine) outstanding, positive report (in my opinion) and then there was the P2P (Pathways to Progress) report.  The former was indicative of forward movement in the cause of ME and the latter, was not.

We’ve been ignored.

There were stand-offs, delays, and hidden refusals when the FOIA was used to obtain documents vital to the ME cause.

And where are we?  After all the hullabaloo and interviews of patients including Laura Hillenbrand, author of “Seabiscuit,” Jen Brea, co-developer of a movie, “Canary in a Coal Mine,” I ask again:

Where are we?

It looked like we had some strong headway for a while, in getting ME recognized as a VERY SERIOUS disease (which it is of course), and…

View original 114 more words

Friday Funday

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Because it is Friday – here are some cute and funny memes to start the weekend off right – with a laugh!

 

funny memes of cats -

(Takes Years of training!)

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(Those are the cutest marshmallows I’ve ever seen!)

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(According to my cats, all dogs are.)

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Funny Cat Meme

(Very funny – that was me trying to cook dinner…)

funny cat meme | Tumblr

(The Pooper Scooper strikes again!)

Funny <3 Cat meme

Surprise!

Every cat...

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Genius!

Best buds.

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And I hope your weekend is beautiful too!  :)

14 Wonderful, Unique and Funny Ways Kids Have Explained Disability

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-Fern

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http://themighty.com

At The Mighty, we know that sometimes kids can offer us a brand new perspective on the world. So, we decided to ask our readers who are parents to share some of the wonderful, unique and funny things their kids have said about their disability.

These were your answers:

1. “‘I’m not Autistic, I’m Cara.’ My now 9-year-old daughter said that when someone called her autistic instead of saying she had autism. Well played, baby girl. Well, played.” – Kim Vivanco

2. “My cousin says she has ‘Up syndrome’ because she’s happy, not sad.” – Cassie Collins

3. “My oldest son is in fourth grade and decided he couldn’t do his math homework because of autism. Nice try, kiddo.” – Stephanie France Fry

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4. “My husband’s student once said, ‘I know I’m special, but why do they call me Ed?’ – Liz Gorgue Rosas

5. “My 3-year-old daughter tells others she has ‘terrible palsy.’ One of these days she’ll be able to pronounce ‘cerebral,’ but today is not that day.” – Ashley Mobley

6. “Another child asked my daughter what her hearing aids were for. She responded, ‘They are like glasses for my ears!’” – Kerri Goff

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7. “My 4-year-old daughter overheard her father and me talking about her autism diagnosis. She turned and looked at us and enthusiastically yelled, ‘I awesome!’ Best mispronunciation she has ever made.” — Kendra Hopkins

8. “Our daughter sometimes wears a gastric drain bag to empty food that is too much for her to handle. She gets a lot of questions and stares. Once, when she was about 6 years old, a woman after a long hard stare said ‘OK, I have to ask, what the heck is that?’ Our daughter, without skipping a beat replied, ‘It’s my own personal slushy, you want to try some?’ I could have exploded trying to hold in my laughter. ” — Kate Sytsma

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9. “Our oldest son, Xavier said to a friend, ‘My brother, Cooper, has autism. Do you know what that means?’

Friend: ‘No.’

Xavier: ‘It means he likes his hotdogs not touching his French fries and that we give him extra time getting out of the car.’

Friend: ‘That’s cool.’

Xavier: ‘You know what else is cool about autism?’

Friend: ‘What?’

Xavier: ‘Everything. Especially Cooper.’”  Makenna Dubay

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10. “My son has worn ankle-foot orthotics for years. He used to be embarrassed and hide them under pants. If someone would say something he would cry. Then, one day, he chose to wear shorts. He was asked by a child what happened to his legs and he said, without hesitation, ‘I fell off a cliff and lived to tell about it.’ The child’s eyes got big and then he walked away, and I turned my head and just about choked through my laughing. Through the sarcasm, my son turned a corner on his disability!” — Julie Bayles

11. “One year at camp another camper asked my daughter, ‘Why do you use a wheelchair?’ to which she replied, ‘Because I’m awesome.’ When that response wasn’t enough, the kid looked at a counselor and said, ‘No, really, why does she use that?’ The counselor then said, ‘Because she gets tired quicker than you… and because she’s awesome.’” — Alexis Snyder

diva animated GIF

12. “I have tics, and I don’t mean the bugs.” —  Kristy Madden Kassebaum

13. “My brothers and I all have autism, but this was my youngest brother’s way of explaining his Asperger’s syndrome:  ‘If my dad’s head was a golf ball, my head would be a beach ball.’ Nobody understood what he meant except him and me, and that’s all that matters.” — Hannah Walker

14. “God had to level the playing field a bit for everyone else, so he gave me spina bifida.” — Jake Siem

jon stewart animated GIF

 

Best Thing I Have Seen All Day!

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Wish I could show you on my blog what gave me a laugh. Unfortunately, I cannot figure out how to post a Vine other than giving you the link. (If anyone out there knows how, please tell me!) However, I will give you a hint: there is a cat involved! (Not much of a surprise there! :) )

Hope you enjoy it as much as I did!

https://vine.co/v/enxuWhadEKP/embed/simple

 

Trump Your Cat

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Found this on Instagram and had to “shair”. (Seems all the cool cats know: Donald Trump -meh…. That hair? Purr-icless!)

Donald Purrump

1.Brush your cat 2.Form the hair you brushed into a toupee 3.Place toupee on cat and 📷 4.Share & tag @trumpyourcat, DM, or #trumpyourcat >^.~.^<

"I don't get along with rich people. I get along with the middle class and the poor people better than I get along with the rich people" - @realdonaldtrump 📷 via @ironelisa on twitter @trumpyourcat

"Boycott @Macys and @Univision. MAKE AMERICA GREAT AGAIN!"- @realdonaldtrump 📷 via @beepie

"Laziness is a trait in blacks" (and long haired tabby cats) - @realdonaldtrump 📷 via @dustandstars. Follow @trumpyourcat on twitter too >^.~.^<

"I have never seen a thin person drinking diet Coke" - @realdonaldtrump 📷 via @movielous

"I do not wear a wig, my hair is 100% mine." @realdonaldtrump 📷 via @puckthemodel

"See the way they're kissing your ass already? That's what happens when you're a boss." @realdonaldtrump 📷 via @sara._.mari

"Do you mind if I sit back a little? Because your breath is very bad." @realdonaldtrump 📷 via @sumares

"The beauty of me is that I'm very rich" @realdonaldtrump 📷 via @spongemom >^.~.^<

😹 @trumpyourcat on @washingtonpost this afternoon http://wapo.st/1Mk7GDP

"All of the women on 'The Apprentice' flirted with me - consciously or unconsciously - that's to be expected." @realdonaldtrump 📷 via @thecatball

"You know, it doesn't really matter what [the media] writes as long as you've got a young and beautiful piece of ass" - @realdonaldtrump 📷 via @evilgeniud

@realdonaldtrump "HILLARY PRESIDENCY WILL CAUSE ‘CRIME WAVE LIKE YOU’VE NEVER SEEN" 📷 via @mrmeowwy

@realDonaldTrump: Stop saying I went bankrupt. I never went bankrupt 📷 via @oskar_the_blind_cat

@realDonaldTrump: Univision apologized to me but I will not accept their apology. I will be suing them for a lot of money. 📷 via @mrmeowy

@realDonaldTrump: I appreciate the GOP candidates who remain strong on border security. They know I am right. 📷 via @whenwillallthis

"Show me someone without an ego, and I'll show you a loser." - @realdonaldtrump 📷 via @melmcclure

"I have so many websites. I have them all over the place. I hire people ... it costs me three dollars." - @realdonaldtrump 📷 via @clgordonwrites

"An 'extremely credible source' has called my office and told me that @BarackObama's birth certificate is a fraud." - @realdonaldtrump 📷 via @lashernation

"We have a 5 billion dollar website. I have so many websites ... I hire people. They do a website. It costs me three dollars." - @realdonaldtrump 📷 via @yaycha

"When was the last time anyone saw us beating, let's say, China in a trade deal? They kill us. I beat China all the time" - @realdonaldtrump 📷 via @jakebot9000

“It’s freezing and snowing in New York. We need global warming!” - @realdonaldtrump 📷 via @mandiwebb78 #trumpyourcat

“I think the only difference between me and the other candidates is that I’m more honest and my women are more beautiful.” - @realdonaldtrump 📷 via @learntoread

"The U.S. has become a dumping ground for everybody else's problems. Thank you. It's true." - @realdonaldtrump

"I will build a great wall — and nobody builds walls better than me, believe me —and I’ll build them very inexpensively. I will build a great, great wall on our southern border, and I will make Mexico pay for that wall. Mark my words." - @realdonaldtrump

That Is Love

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Inspirational QuoteWhat do I love about this inspirational quote? It is about all kinds of love: romantic, friendship, empathetic. Watching your child laugh and play can fill your heart. Your cat purring with contentment can do the same. A stranger dancing with joy at a concert makes you love the show all the more. When you can fill your life with love and happiness just by feeling it through another, you have won the love lottery.  <3